Life Talk

SICKLE CELL DAY! MIND BLOWING MOMENT WITH MISS MIRABEL.

In case you are not aware that today is world sickle cell day… Then we would love to inform you that today is world sickle cell day. We are celebrating all sickle cell patient who are great warriors fighting to survive and we are also pleading with every one in love to check their genotype before marriage, we can save the world and encourage the people in it more when we take caution in things we do.
Below is a word of encouragement from an highly inpsring student of the University of ilorin, who has being fighting the battle and is interested in encouraging other sickle cell paitent.
Miss Merable is a 300level in the University of ilorin.
More success and strength to you ma.

World Sickle Cell Anaemia Day: Know Sickle Cell Today!
Every June 19 is World Sickle Cell Anaemia Day… A day to celebrate sickle cell warriors and also create more awareness about the disease.
What is Sickle Cell Anaemia?
Sickle Cell Disease (often called SCD) is an hereditary blood disease/disorder characterized by an abnormality in the oxygen carrying haemoglobin molecules in the red blood cells. A normal red blood cell is disc-shaped and very flexible but in SCD, the red blood cells changes shape and looks more like a sickle or moon crescent.
Because of this shape, they do not move well through the tiny blood vessels. This can stop or slow down blood flow to some parts of the body thereby causing less oxygen flow in the body.
Sickle red blood cells live for only 10-20days whereas, normal red blood cells live up-to 120days. The damaged sickle red blood cells could also clump together or get stuck to the walls of the blood vessels, as a result, blocking blood flow.

This can cause severe pains (which is what is known as crisis), permanent damage to brain, heart, lungs, kidney, liver and sometimes spleen.
A Typical Sickle Cell Crisis
A typical sickle cell crisis could occur as a result of a number of reasons, could be as a result of sudden change in weather, too cold or too hot weather, stress, low blood level (low pcm), anxiety, an illness (could be malaria) iron intake, or when the red blood cells get stuck into the blood vessels resulting in an insufficient oxygen supply in the body. Truth is, crisis differ from patient to patient but these are the factors that could trigger a crisis. The severity of a crisis depends on what triggered it. A crisis triggered by anxiety might just last for a few hours or for as long as you remain anxious whereas a crisis triggered by insufficient oxygen supply in the body could last for over a week… A crisis is indescribable, it’s a pain that words can’t describe… Places where you could have crisis in includes the joints, knee, legs, waist, hands, back, etc. Once a crisis starts, if not treated immediately, it builds up continuously.
How does one get Sickle Cell Disease?

It’s transferred through parents to offspring. Two carriers of the S gene must not get married if not, chances of having an SS child is very possible.

Hope for the Sickle Cell Warrior
Living with sickle cell is quite difficult, it is not easy having to explain to people why you were suddenly absent from an event you planned on attending, it’s not easy having to explain to people why you can’t do certain things or eat certain foods, it’s just not easy cos even the doctors do not understand this pain.
They treat based on guessing. But there is hope for you, you don’t have to allow sickle cell limit you. Don’t allow sickle cell disease make your everyday a sick day. Don’t allow sickle cell disease cripple your dreams. You are a warrior, stronger than those with the normal gene so don’t let anything stop you.

How to deal with sickle cell stigmatisation as a sickle cell patient
1. love yourself: make yourself your favourite person. You have to love you before others can love you
2. Believe in yourself
3. Refuse to receive pity from people: your illness doesn’t define you so don’t let people define you with it
4. Do NOT at any point see yourself as less than others: no you are a very strong person, stronger than those with the normal gene
5. Don’t allow sickle cell define your life or limit your dreams
6. Unleash your potentials even with sickle cell anaemia. You can be whoever you chose to be despite sickle cell anaemia, the choice is yours, chose wisely.

A sickle cell free generation is possible, it begins with you and I. Check your genotype before you say yes to that babe or guy because your love can not protect your child from the claws of sickle cell crisis.
Happy World Sickle Cell Anaemia Day!

From miss merable.
Prouldy supported by all of us at gimme hear

Temi Badmus
Temi Badmus
Temi Badmus is a Food scientist and an Art enthusiast. Her desire is to give a listening ear to people and to give an opportunity for everyone to be heard. Has any one told you that you are special? Yes, you are. You were beautifully designed, you are relevant to this generation and very special to me.
http://Gimmehear.com

14 Replies to “SICKLE CELL DAY! MIND BLOWING MOMENT WITH MISS MIRABEL.

  1. Oh dear, this so touched me.
    This is brave of you. You will surely sail through this. Keep up with your bravery, the Lord is your strength.

  2. I was futurnate to witness Mirabel’s crises once throughout our closeness indeed it was scaring, and at the same time I was confused, don’t know how I could be of help all I could do is to pray for her. Mirabel, even though you are SS, I don’t pray you experience any forms of pain in your body system again….Still I’ll ALWAYS be proud of you my baby girl. Thanks for appreciating and celebrating yourself and what you can’t change about yourself also for encouraging others.. 👏 Mirabel happy celebration, you will celebrate more years in good health if God tarry….. Love you plenty.

    1. I was futurnate to witness Mirabel’s crises once throughout our closeness indeed it was scaring, and at the same time I was confused, don’t know how I could be of help all I could do is to pray for her. Mirabel, even though you are SS, I don’t pray you experience any forms of pain in your body system again….Still I’ll ALWAYS be proud of you my baby girl. Thanks for appreciating and celebrating yourself and what you can’t change about yourself also for encouraging others.. 👏 Mirabel happy celebration, you will celebrate more years in good health if God tarry….. Love you plenty

  3. this was written all long time ago… about a year or so

    This poem is been inspired by the death of one of my Colleague, Olaleye Loveth, a student of University of Ilorin, Educational Technology 400 level.

    I’ve lost close to 10 people most especially young people due to sickle cell and this have always been great pain to me, its just as if two selfish people brought one person to the world to suffer all in the name of Love

    When we met
    My heart skipped some beats
    I approached you with beads
    Our words danced to the same beat
    Our conversation was a perfect duet

    I drew closer, you came nearer
    I expressed my heart, you shared tour feelings
    You saw it all in my eyes, I saw it in your deeds
    Time passed, seasons crossed
    Our lives became one

    We felt the moon during honeymoon
    Our home was a cloud nine (9)
    We acted like babies
    Soon we gave birth to one
    She was Queen by name

    In character and beauty
    She was a Queen
    Her intelligence was immeasurable
    Smart and witty she was
    Not until she began to change

    We thought it was growth
    Until we visited medicine
    The practitioner looked with disgust
    Genotype was his first question
    Them our eyes paired, lunching our memory

    We realised we were schooled
    Not educated
    Cloud nine (9) became paradise in hell
    Fear and confusion, the order of our day
    Like a bat out of hell for every headache

    Pangs and pains for Queen
    She was a sickle cell
    She brought regret to our world
    But we brought her to a world of sickness
    Intertwined with the fear of sudden death

    She looks at us with love and pains
    We look back with love and chance to run back time
    Her change was getting worse
    Her skeleton doesn’t need x-ray
    Our home was a living hell

    We woke up to celebrate her birthday
    But she was cold to my thermo-receptor
    Her heart refuse to beat
    Her eyes were wide open
    The Beauty in her eyes were amazing

    My eyes were filled with tears
    But my cheeks rejected the tears
    I couldn’t wail because I had to be strong
    Thought filled my heart
    We didn’t let the next generation to live

    We neglected the place of Genotype
    We were blinded with love
    But love isn’t blind!
    We only mad our heart the driver
    And our brain the passenger

    I’ll preach Genotype to the world
    The next generation have a chance to live
    Sickle cell is pain
    Don’t put people in pain
    My love, don’t miss me, I might not return

    Joel Julius Temitope
    agape_words

    1. thank you so much Joel Julius Temitope… this poem indeed describes the tale of sickle cell anaemia. please keep spreading the word about sickle cell until people understand that love can not save a child from the pains of sickle cell.
      I stand with you sir.

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